My CHEO Story
I am a former CHEO patient finishing up my undergraduate degree in Translational and Molecular Medicine at the University of Ottawa. The care I received at CHEO was excellent, but interested in making some improvements, I joined Youth Forum from 2018 to 2021. I began volunteering with the Family Leader Program in 2019, and in 2021 became a member of the Patient and Family Advisory Council as a 2-year mandate.
During my time with the Family Leader Program, I have been involved as a steering group member for a Priority Setting Partnership led by Dr. Peter Gill at SickKids. This study led to the formation of the Top 10 Research Priorities surrounding the care of hospitalized children on the general pediatric inpatient unit, as determined by clinicians, allied health professionals, parents, and former patients.
As I continue on towards a career in research, I intend to integrate the patient and family perspective in my work and continue to seek out opportunities for engagement.
Areas of Interest
- Cancer
- Genetics
- Inflammatory Bowel Disease
- Pain
- Mental Health
- Rare Disease
Why I'm involved
I want to get involved in this work because I think that by encouraging the patient’s perspective in research, we are engaging patients on a whole new level, promoting better research outcomes.
My Role
- RI PFAC 2021-2023
- Youth Advisory Alumni
- Research Reviewer
- Family Advisor – James Lind Alliance
- Patient, Caregiver, and Clinician Participation in Prioritization of Research Questions in Pediatric Hospital Medicine
Milestones
