Nancy Young

Scientist, CHEO Research Institute

Dr. Young is a Senior Scientist at the CHEO Research Institute and specializes in child health measurement science. She completed her MSc in Clinical Epidemiology and PhD in Medical Science at the University of Toronto, and began her career as a Scientist at the Hospital for Sick Children, where she remains an Adjunct Scientist. She is also a Senior Scientist at IC/ES. Over the past 25 years, she has worked to give children a voice in their own health assessments. She has worked with many different populations, including children with chronic complex disabilities and those with bleeding disorders. Her current program of research focuses on innovative methods to measure quality of life among children with rare disorders and on creating culturally relevant approaches to health measurement with and for Indigenous children and youth. She collaborates with many Indigenous health leaders to meet the needs of children in rural and remote communities. Through collaboration, she has been able to improve access to high-quality local data that inform health services planning within Indigenous communities. Her team is active in creating and sharing culturally relevant and accessible resources: www.ACHWM.ca. Dr. Young’s research program is funded by grants from CIHR (a Pathways Component 3 Team Grant), the Cundill Foundation, AMS Health Services, Health Canada, and the Ministry of Children Community and Social Services in Ontario.

Research Projects

  1. Blending Indigenous Sharing Circle and Western Focus Group Methodologies for the Study of Indigenous Children’s Health: A Systematic Review

    12/05/2021

    Several groups have published results that describe approaches that successfully incorporated aspects of Indigenous sharing circles into Western focus groups, thus establishing a research method that is culturally safe and appropriate for the study of Indigenous children’s health.

  2. Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H-FIT)

    07/05/2021

    The H-FIT has good preliminary measurement properties and may be responsive to changes in therapy associated with a decreased burden of administration.

  3. Komen sa vo ? Évaluation des besoins de santé et intégration à la culture francophone, anglophone et autochtone chez les enfants métis en milieu minoritaire

    02/02/2021