Lidiane Cunha

My CHEO Story

Nine years ago, when my family lived in Montreal, my daughter was diagnosed with a rare genetic condition. It was during this time that I found out that I also had it . Like any other parents, we had many questions. What did it mean for my daughter’s development and how would it impact me? While we both had a mild type of the condition, my daughter required a treatment to support her growth and physical development. Thanks to collaborations between Dr. Ward at CHEO and Dr. Rauch at the Shreiner’s, my daughter was able to continue receiving excellent care when we moved to Ottawa. She is thriving and surprising the doctors at every visit! We are very grateful to the team at CHEO for their amazing support

Why I'm involved

We still have a lot to learn about osteogenesis imperfecta (OI) and how it impacts children’s lives. By sharing my experience raising a child with OI, I hope I can help researchers better understand this rare condition and ultimately improve current treatments.

Areas of Interest

Rare Disease

My Role