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Can a complex care coordination program 

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help kids like me with complex medical needs?

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Thank you for the question.

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It's really important and I'm pleased to let you know

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that we're getting closer to better understanding how to better deliver 

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coordinated care for this population. 

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Children with conditions that we define as complex care 

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with medically fragile health are children

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with chronic conditions

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who require professional expertise,

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often in the hospital setting, 

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The health-care system is not 
organized and structured

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to provide care for these children,

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nor is it integrated.

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Because of this, children often 
experience disjointed care.

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Through this project, a 
child was randomized

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when they were referred to a 
complex care program across Ontario.

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They were randomized between 
two groups: 

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an intervention where they were 
partnered with a nurse

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practitioner and a physician, 
versus a control group where

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they were put on a waiting list 
for up to twelve months

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before they would receive 
the intervention.

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What we have identified after 
one year of intervention

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is that the children in the intervention 
group benefitted from the care plans

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beforehand in the 
improvement of care 

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coordination.

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And after two years, 

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we identified that parents had 
benefitted in terms of their health, 

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their physical health, 

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fatigue and less sleep disturbance.

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We also identified that the 
cost to the health-care system 

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was reduced in the group that 
received the intervention. 

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It is necessary to continue to 
study the impact of these programs

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to better understand how we can 
improve care for these 

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children and families.