1 00:00:00,125 --> 00:00:03,294 I have a higher risk of bleeding 2 00:00:03,294 --> 00:00:06,965 because I have a low platelet count. 3 00:00:06,965 --> 00:00:11,386 Will taking special medication help improve 4 00:00:11,386 --> 00:00:13,805 my quality of life? 5 00:00:15,515 --> 00:00:17,475 Yeah, that's an excellent question. 6 00:00:17,475 --> 00:00:22,939 You have a condition called immune thrombocytopenia or ITP, which involves 7 00:00:23,523 --> 00:00:27,068 your immune system attacking your platelets and causing them to go low. 8 00:00:27,736 --> 00:00:31,322 Platelets have a very important role in stopping the bleeding 9 00:00:31,322 --> 00:00:32,699 so that when you cut yourself, 10 00:00:32,699 --> 00:00:35,910 they're the sticky cells that actually stop the bleeding from occurring. 11 00:00:36,494 --> 00:00:38,955 We have a new medication now which stimulates 12 00:00:38,955 --> 00:00:42,000 the production of these platelets and bring the platelet count up 13 00:00:42,250 --> 00:00:44,419 and because of that decreases the bleeding. 14 00:00:44,836 --> 00:00:47,547 So what we did is we actually interviewed 20 children 15 00:00:47,547 --> 00:00:51,634 with ITP involving them and their parents and asked them what they thought. 16 00:00:52,177 --> 00:00:55,513 The good news is 19 out of 20 thought that the medicine works. 17 00:00:55,930 --> 00:00:56,514 And over 18 00:00:56,514 --> 00:01:00,226 half of them felt that their mood improved and they were able to do more activity. 19 00:01:00,602 --> 00:01:04,314 When we looked at the platelet count, it was very low at 15 20 00:01:04,314 --> 00:01:08,318 for the six months beforehand, but afterwards it increased to 100 afterwards. 21 00:01:08,318 --> 00:01:09,652 So the medicine did its job. 22 00:01:10,820 --> 00:01:13,573 When we asked them about any concerns they had, there is a concern 23 00:01:13,573 --> 00:01:18,578 about the cost because it's very expensive and the timing of taking the medication 24 00:01:19,496 --> 00:01:21,915 and then worry about potential side effects. 25 00:01:22,457 --> 00:01:25,585 But the great news is there was less bleeding. 26 00:01:25,877 --> 00:01:29,422 The children had less worries about the bleeding happening, 27 00:01:29,714 --> 00:01:33,218 and overall they were able to participate in more sports and more activities.