Heather MacPhail

My CHEO Story

My daughter was born at 30 weeks following a high-risk pregnancy; she stayed in four different neonatal intensive care units for approximately three months. Once she was discharged, she was seen frequently at a variety of clinics at CHEO, as well as OCTC as she was not meeting developmental milestones. Eventually, she was diagnosed with Cerebral Palsy. Over the years we have been discharged by a number of clinics – we are hopeful that someday we’ll be discharged from all of them!

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Why I'm involved

I feel that families have an important voice in guiding and developing research. Participating in this work allows me to contribute and provide a family perspective, which can provide a unique lens on research questions.

Areas of Interest

Neonatal Intensive Care

My Role

  • Patient and Family Advisory Committee Member and CoChair 2018-2019
  • Provided Letter of Support – HALO
  • Patient and Family Advisory Committee Member CoChair 2019-2020
  • Research Project Reviewer: Development of a remote video motion lab
  • Research Project Reviewer: What is known about the use of social media by families with genetic diseases: A scoping review and Reviewer Defining and Operalizing Assent in the PICU: A stakeholder Survey